More prayers going up for yall everyday! you have amazing strength to deal with all you do. Macie is a lucky kid to have such great parents.
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Macie :)
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Well I have sat here since Sat. and watched Macie squirm and generally looked like she had some pain somewhere. I have tried everything, moving her, putting her in the wheelchair and going outside, changing her, and even had them give her some morphine all to no avail. Well I just got up to try again, vented her g-tube (let the gas out), moved her a little and checked her diaper. She's wet. So I go use the restroom myself before getting a nurse to help me. Come out of the bathroom and she is totally relaxed and sound asleep. I mean not moving a muscle, heart rate down to 100, looking as peaceful as I have seen her in a very long time. I know its not right, but that diaper can wait at least 30 min so she can enjoy the peacefulness.
Thank you all for your continued prayers and coming back to this thread to check on Macie and us.
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