I have no way of knowing exactly what you, your wife, and the rest of your family have been through, nor the dealings of what the future holds. One can only imagine - yet, still not understand. I pray for Macie, Keili, and you, Dad. Prayers for support, strength, love and guidance. Peace be with you.
Lord, today is a new day. We pray today for Macie for your touch and your healing. We pray for Brian and Keili for strength and power and wisdom and grit, touch them as only you can. We believe in your power and your miracles and we're asking for a big one here for Macie. In the name of your son Jesus, amen.
I've never held back my feelings on this thread or lied about the things I've done or thought, so I'm not going to start now. There is still only one God who knows the plan for Macie. We are just here to try and make her as comfortable as we can while he carries his plan out. I'm not sure how long that will be. I honestly thought I was ready for the day she goes to be with him. But yesterday hit me like just about as hard has it did the day this all started. Macie has been cruising along so well for the past couple of weeks or months I guess I figured she was good and this was the new normal. Last night was good. They gave her a new med via IV before she left the hospital, that seemed to work really good. I'm pretty sure her new proscription is the same med, probably not as strong. Hopefully that will keep the seizures at bay. Let me say these seizures are not the violent shaking type. She gets a blank stare and then starts a loud laughing/moaning. I am grateful that it's not the shaking kind, but it's so hard to listen to her and not be able to do anything to calm/stop it. Especially now, knowing that each one is taking a little more life from her.
Once again thank you all for praying for her/us and listening to me. You are the family I turn to in these hard times.
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