Originally posted by Burnadell
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Let’s help JYoung…sometimes it is something so simple that can make a BIG difference
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Just want to send a big thanks to everyone for your support of Jeff through this journey. It feels so good to know that we have the biggest family in the world and it spans across the entire state of Texas and beyond. I know you will always have his back and be there for him. Moving to Texas 9 years ago was the best decision we ever made ( besides getting married and having Ryen of course). I really don't know where we would be if we hadn't made it here. Of course the green screen is where we met our first friends(and our closest friends). They welcomed us with warm hearts. Thank you so so much to Mary! I can't say enough about Mary. One of the kindest souls I have ever met. Thank you so much for taking such good care of Jeff. Thank you to everyone who donated and helped to make this happen. You are all angels in my book.
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Originally posted by jyoung View PostAll,
I can't tell you how much this means to my family and I. Those who know me know that I am not very good at accepting things like this, it's hard for me to do, but Mary has convinced me that I need to swallow my pride this time.
I must say, it is awesome to have such great friends and without TBH, I would not have a single one. Heck, my family is treated like an extension of everyone's family that I've ever met on this site. Just amazing how awesome TBH is.
I'd like to update everyone on my health. Since this is the whole reason for donations, I feel it is a proper time to let all of this out.
Everyone who knows me, also knows that I can sometimes go days without sleeping, which in turn makes everything worse. I can take every drug known to man for pain, sleep and muscle relaxing and even add whiskey to it, all at the same time, and I will still go 72 hours without sleep. Sleep is kind of a big deal for me.
I was diagnosed in 2010 with a Parkinsonism, they still do not know what kind yet, but they do know it is not like the Michael J. Fox type. He actually ****** me off because he can really make things look easier than they are. Anyways, I continued with life and never really worried about it. I have a million prescriptions and as long as I took those, all was fine. Then, everything changed, all of a sudden the meds weren't working as well.
So we went back to the doctor in November of last year. The doctor told my wife and I to prepare financially for the worse and to get everything in order for me to pass on. She told my wife and I that I have an atypical parkinsonism. They will not know which type I have until I have passed and they cut open my brain, but basically, it is a much shorter lifespan and a lot harder for my family to watch.
If you look up atypical Parkinsons, Parkinsons Plus or MSA, you will see the difference. I get dystonia which causes me to freeze up, my brain doesn't work anymore for coordinating my muscle actions. Things you do everyday that people take for granted are now impossible for me. It's funny, because I will get so frustrated trying to do the simplest of tasks like tying your shoe and will end up throwing it away because I couldn't tie it. It can be tough for sure but this is just the beginning. It will get worse, but I'm okay with that. It is the cards I was dealt and I will gladly deal with this hoping that it won't happen to my daughter later in life.
Some days I can do really well though. But usually it's when my wife keeps me on my routine and I get enough sleep. Without sleep, everything goes to hell before my day even starts.
The last couple of months have been really, well, tough. I had my hip replaced because of Arthritis and thought I would bounce back fairly quickly. Well, when you have a movement disorder that affects your muscles, getting healed quickly is not in the cards I guess. I am still going through therapy and it's almost like you take 10 steps forward and then 20 backwards. I will get better, get worse, etc... It will just take time, but it is frustrating as well.
Then, out of the blue they saw a nodule on my thyroid during an MRI that checked my discs in my neck. Come to find out, I have something in my thyroid that is cutting the blood supply or whatever is in there off. They do not know yet if it is cancer, but they think it is because typically when they see this it ends up being that. I have to get a biopsy done and will know more about this next week or so.
Some people would have cracked by now, but I am keeping positive and I am fighting through all of it. I've dealt with more pain than anyone should ever have to go through, but I keep on moving forward. Life is just really crazy, and I'm okay with that, probably because I'm just crazy enough to deal with it...
Thanks for everything, I cannot tell you how much this means to my family and myself. I do not know what I would do without all of the support from the green screen, you guys definitely keep me going!
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Originally posted by buckybill View Postjust saw this so i'm kicking a little money your way for a lamp or something. lol take care of yourself my friend.
Blows my mind.
Again, I can't thank y'all enough. Texas has the best people in all of the United States! I've lived in several states and there is no comparison!
Each and every one of you have a special place in my family's heart! My mom and dad have been the blown away by the support given. My dad has even shed tears of joy over this. Thought I'd never see the day that would happen.
God bless you all!Jeff Young
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Let’s help JYoung…sometimes it is something so simple that can make a BIG dif...
Have to believe that the real story isn't the money or what the money buys but the mental boost of just knowing that a community has your back and that you don't have to face the crummy hand of cards you have been dealt alone. You really can't put a price on that.
Fall is here. There's ample good in the world.
Of course, it's hard to put a price tag on a good nights sleep too.Last edited by Legdog; 10-04-2014, 07:46 AM.
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Originally posted by Legdog View PostHave to believe that the real story isn't the money or what the money buys but the mental boost of just knowing that a community has your back and that you don't have to face the crummy hand of cards you have been dealt alone. You really can't put a price on that.
Fall is here. There's ample good in the world.
Of course, it's hard to put a price tag on a good nights sleep too.
I also generally dislike guys who show off by throwing big money around. However, those folks who paid ridiculous prices for those stic knives, well they are about as cool as you can get.
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Originally posted by Legdog View PostHave to believe that the real story isn't the money or what the money buys but the mental boost of just knowing that a community has your back and that you don't have to face the crummy hand of cards you have been dealt alone. You really can't put a price on that.
Fall is here. There's ample good in the world.
Of course, it's hard to put a price tag on a good nights sleep too.
It brings tears to my eyes just thinking about this. I'm not very good dealing with the emotional stuff, but I'm having to learn to do it.Jeff Young
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