Hello Miss. Giggles, been busy but havent forgotten about the awesome smiling face you have. Want you to know we're praying for you and wanting to see more smiles.
God Bless you all and thanks for posting Brian when you can!
Ricky we ran into a little problem. Macie has been bloated, so she can't fit into her "body suit". She has to wear it in order to get in the stander. I told Keili as soon as they get a picture send it to me. I'm in GA with Harley at a shooting match. That's another problem, it takes 2 people to get her in it. We have to monitor her blood pressure very closely while she is in it. As soon as I get one I'll post it.
So I got a email today from the alarm company saying the power went out. (Storm) so I texted the nurse to check on them. She said she had just got Macie out of her chair, back into bed. The head of her bed was almost straight up. Well the power went out and the nurse couldn't lay the bed back. Plus the air mattress deflated. Needless to say Macie wasn't very happy with the nurse. Not that it was her fault.
Ricky we ran into a little problem. Macie has been bloated, so she can't fit into her "body suit". She has to wear it in order to get in the stander. I told Keili as soon as they get a picture send it to me. I'm in GA with Harley at a shooting match. That's another problem, it takes 2 people to get her in it. We have to monitor her blood pressure very closely while she is in it. As soon as I get one I'll post it.
So I got a email today from the alarm company saying the power went out. (Storm) so I texted the nurse to check on them. She said she had just got Macie out of her chair, back into bed. The head of her bed was almost straight up. Well the power went out and the nurse couldn't lay the bed back. Plus the air mattress deflated. Needless to say Macie wasn't very happy with the nurse. Not that it was her fault.
Brian
Darn the bad luck, prayin for some peace around Macie for the day.
Whiney, laughing at everything and bloated. Sounds like a teenager! I can't wait to see the pics with the stander. I'm glad her therapies are continuing to help her thrive.
Macie had Botox on Wednesday so she's pretty sore. Just got this text from Keili
Omg! We just out Macie in her bubble tub....as soon as she realized what it was....she got a HUGE smile on her
face and was making "ahh" sound and and giggled.
Macie had Botox on Wednesday so she's pretty sore. Just got this text from Keili
Omg! We just out Macie in her bubble tub....as soon as she realized what it was....she got a HUGE smile on her
face and was making "ahh" sound and and giggled.
Brian
That's awesome. Love to hear about some happy Macy Moments
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