Originally posted by 150class
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Some scary stories on here about that stuff
Originally Posted by CP121 View Post
I’ve posted a lot of this same story on here before but here it is again in hopes it could help anyone.
I wouldn’t wish Lyme on my worst enemy. My mom started feeling terrible about 5 years ago. No recent tick bites, fever rash, any of the “usual” symptoms. It took over 2 years to finally get diagnosed. I bet we went to the ER 50+ Times and of course after going that many times the dr’s think you’re just crazy and want to feed you Xanax or some other crap for anxiety. It got to the point where I had no idea what to do, I knew the ER wouldn’t be much help, but when she’s having seizures, facial paralysis, collapsing while walking, chest pains, all sorts of other symptoms I had to take her somewhere because her primary care doctor hadn’t been much help.
Finally after my grandpa made a huge donation to Scott and White we got her into the executive health division there in Temple. They ran every possible test they could think of, ruling out any cancer or MS or anything else. They said according to the tests she was in perfect health.
I had mentioned running a test for Lyme multiple times, but they always told me there’s no way she had Lyme, there’s no Lyme disease in Texas (yeah right) and that they had done everything they could. I finally had enough of all the BS we had gone through and demanded the Dr just run a simple blood test for Lyme. Sure enough a few days later we get a call that it came back positive.
They of course didn’t know much about the treatment and all the other infections that usually coincide with Lyme so they prescribed the standard 30 days of doxycycline.
Long story short that didn’t work, she just kept getting worse. We started going to a Lyme specialist here in north Texas who was very knowledgeable, but still didn’t provide any improvement. That went on for about 2 more years, at this point she went from being about 160 lbs to less than a hundred. Nothing but skin and bones.
I had been researching a ton about Lyme during all this and got an appointment with Dr Jemsek in Washington DC who is supposed to be one of the nations top Lyme specialists.
At this point she’s so weak I had to push her through the airports and to the clinic in a wheelchair. He put in a PIC line and started her on IV antibiotic treatments and fluid flushes, which I had to continue everyday of the week from home. Needless to say, after a year of that she was even worse off than ever. She literally looked like she was going to die at anytime, and no one knew what to do.
Finally I had heard about a dr at a clinic in San Angelo named Dr Steve Hines of Hope Wellness Center. His treatments aren’t fda approved so he takes his patients to Acuna Mexico.
We got booked into there and started that process and immediately she started getting better.
Here we are now over a year later and she’s totally back to normal, gained all her weight back, and feels great. As we speak she’s out at my ranch fishing one of the lakes. Pretty sure she’s caught every fish on the ranch haha!
Sorry for the long read, but I dealt with this for over 5 years of my life and I know 99% of doctors around here CANNOT treat this disease effectively. So if our story can help anyone at all I want to do everything I can to keep other people from going through that nightmare. I can’t recommend Dr Hines enough, he saved my moms life. If anyone has any questions feel free to PM me, I know I’m not an expert, but I’ve dealt with it a long time and can help point you in the right direction.
Originally Posted by CP121 View Post
I’ve posted a lot of this same story on here before but here it is again in hopes it could help anyone.
I wouldn’t wish Lyme on my worst enemy. My mom started feeling terrible about 5 years ago. No recent tick bites, fever rash, any of the “usual” symptoms. It took over 2 years to finally get diagnosed. I bet we went to the ER 50+ Times and of course after going that many times the dr’s think you’re just crazy and want to feed you Xanax or some other crap for anxiety. It got to the point where I had no idea what to do, I knew the ER wouldn’t be much help, but when she’s having seizures, facial paralysis, collapsing while walking, chest pains, all sorts of other symptoms I had to take her somewhere because her primary care doctor hadn’t been much help.
Finally after my grandpa made a huge donation to Scott and White we got her into the executive health division there in Temple. They ran every possible test they could think of, ruling out any cancer or MS or anything else. They said according to the tests she was in perfect health.
I had mentioned running a test for Lyme multiple times, but they always told me there’s no way she had Lyme, there’s no Lyme disease in Texas (yeah right) and that they had done everything they could. I finally had enough of all the BS we had gone through and demanded the Dr just run a simple blood test for Lyme. Sure enough a few days later we get a call that it came back positive.
They of course didn’t know much about the treatment and all the other infections that usually coincide with Lyme so they prescribed the standard 30 days of doxycycline.
Long story short that didn’t work, she just kept getting worse. We started going to a Lyme specialist here in north Texas who was very knowledgeable, but still didn’t provide any improvement. That went on for about 2 more years, at this point she went from being about 160 lbs to less than a hundred. Nothing but skin and bones.
I had been researching a ton about Lyme during all this and got an appointment with Dr Jemsek in Washington DC who is supposed to be one of the nations top Lyme specialists.
At this point she’s so weak I had to push her through the airports and to the clinic in a wheelchair. He put in a PIC line and started her on IV antibiotic treatments and fluid flushes, which I had to continue everyday of the week from home. Needless to say, after a year of that she was even worse off than ever. She literally looked like she was going to die at anytime, and no one knew what to do.
Finally I had heard about a dr at a clinic in San Angelo named Dr Steve Hines of Hope Wellness Center. His treatments aren’t fda approved so he takes his patients to Acuna Mexico.
We got booked into there and started that process and immediately she started getting better.
Here we are now over a year later and she’s totally back to normal, gained all her weight back, and feels great. As we speak she’s out at my ranch fishing one of the lakes. Pretty sure she’s caught every fish on the ranch haha!
Sorry for the long read, but I dealt with this for over 5 years of my life and I know 99% of doctors around here CANNOT treat this disease effectively. So if our story can help anyone at all I want to do everything I can to keep other people from going through that nightmare. I can’t recommend Dr Hines enough, he saved my moms life. If anyone has any questions feel free to PM me, I know I’m not an expert, but I’ve dealt with it a long time and can help point you in the right direction.
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