Day 39 update. As I walked into Emmett's room and peered into his isolette to say good morning, the first thing that crossed my mind was "wow he looks big!" I glanced up at his chart on the wall and seen he gained 50 grams. A quick conversion on the phone proved Emmett to have eclipsed 3 lbs! That breast milk is doing some good. The doctor ordered a blood gas and complete blood count (CBC). The blood gas report came back great, as did the CBC. It was looking to be another great day...
The neonatal doctor came in to talk to me about a discussion that was had amongst the infectious control doctors. There were differing opinions on the oral regiment of Emmett's medication. It was finally agreed upon that if they performed an MRI to double check the area of concern that showed up on the last MRI, they would all buy in to continuing the oral treatment. This completely blindsided us, as we thought the spot that showed up was nothing to be concerned with. So not only does Emmett have to be sedated for another MRI, he has to have another IV line put in AND has to be reintubated. This was really hard for me to come to terms with. There is so much stress and risk involved in this just to double check something. Plus, for one doctor to be completely ok with it then the next to have all these concerns made it difficult to understand. I hesitantly signed the consent.
The thought of putting our baby under sedation again scares us. Along with the general risks associated with doing such, I can't help but worry about what this could be doing to him from a developmental stand point. Maybe it's nothing, but mind goes there. The MRI has to be done on an empty stomach, so they will have to stop his feeds and start him back on TPN. I doubt I'll be able to watch them reintubate him again, as last time was one of the more difficult things I've watched.
If you have a second, please join us in prayer that tomorrow goes smoothly. We pray that Emmett tolerates the procedure well, and that no damage results from being reintubated or sedated. We pray the results come back clear as expected. Thank you.
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The neonatal doctor came in to talk to me about a discussion that was had amongst the infectious control doctors. There were differing opinions on the oral regiment of Emmett's medication. It was finally agreed upon that if they performed an MRI to double check the area of concern that showed up on the last MRI, they would all buy in to continuing the oral treatment. This completely blindsided us, as we thought the spot that showed up was nothing to be concerned with. So not only does Emmett have to be sedated for another MRI, he has to have another IV line put in AND has to be reintubated. This was really hard for me to come to terms with. There is so much stress and risk involved in this just to double check something. Plus, for one doctor to be completely ok with it then the next to have all these concerns made it difficult to understand. I hesitantly signed the consent.
The thought of putting our baby under sedation again scares us. Along with the general risks associated with doing such, I can't help but worry about what this could be doing to him from a developmental stand point. Maybe it's nothing, but mind goes there. The MRI has to be done on an empty stomach, so they will have to stop his feeds and start him back on TPN. I doubt I'll be able to watch them reintubate him again, as last time was one of the more difficult things I've watched.
If you have a second, please join us in prayer that tomorrow goes smoothly. We pray that Emmett tolerates the procedure well, and that no damage results from being reintubated or sedated. We pray the results come back clear as expected. Thank you.
Sent from my SM-G892A using Tapatalk
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