Last year I posted about a little buddy of mine name Waylon Malone. Many contributed and a few came to Waylon's benefit we had at River Road Icehouse back in April. Waylon was sent home from St. Jude's in August with a clean bill of health and Cancer Free (NED). Waylon has been acting like a normal 6 year old since returning to New Braunfels.
Waylon returned to St. Jude's on Tuesday for a a follow up exam. Below is the email we just received from Waylon's mom Stacey. Please keep this family in your prayers as they have a very difficult year ahead.
Today's appointment with Dr. Sara did not go as planned. The MRI revealed that Waylon has 6 neuroblastoma spots in his brain. Words cannot describe how I feel and how completely devastated am. I am in shock and disbelief. This CANNOT be happening to my Waylon. This IS NOT at all how things were supposed to go. I am crushed. I am sad. I am terrified. There's got to be something wrong with the MRI machine because he's been fine. He's been better than fine; he's been great! Chris Malone has booked a flight that leaves tomorrow at 5:30am so he can be with us. At 9:15am tomorrow Waylon will have an MRI of his spine to see if it's also there. In the afternoon we will discuss treatment options. At this point, we will have a lot of very hard decisions to make; to do whatever and go wherever we need to or to preserve his quality of life and find treatment closer to home--treatment that is not as harsh while keeping the pain away. No parent should ever have to think about these things. I am shaking and crying as I write this. This is the hardest post I've had to write. When I asked Dr. Sara how long, she said "months, not years". I WILL NOT GIVE UP HOPE. I WILL NOT STOP PRAYING. GOD SAVES PEOPLE EVERYDAY AND WAYLON IS A FIGHTER. I BELIEVE that Waylon was put on this earth and given this disease to show people how to fight, how to be courageous and how to be strong. I love Waylon and I cannot lose him.
Waylon returned to St. Jude's on Tuesday for a a follow up exam. Below is the email we just received from Waylon's mom Stacey. Please keep this family in your prayers as they have a very difficult year ahead.
Today's appointment with Dr. Sara did not go as planned. The MRI revealed that Waylon has 6 neuroblastoma spots in his brain. Words cannot describe how I feel and how completely devastated am. I am in shock and disbelief. This CANNOT be happening to my Waylon. This IS NOT at all how things were supposed to go. I am crushed. I am sad. I am terrified. There's got to be something wrong with the MRI machine because he's been fine. He's been better than fine; he's been great! Chris Malone has booked a flight that leaves tomorrow at 5:30am so he can be with us. At 9:15am tomorrow Waylon will have an MRI of his spine to see if it's also there. In the afternoon we will discuss treatment options. At this point, we will have a lot of very hard decisions to make; to do whatever and go wherever we need to or to preserve his quality of life and find treatment closer to home--treatment that is not as harsh while keeping the pain away. No parent should ever have to think about these things. I am shaking and crying as I write this. This is the hardest post I've had to write. When I asked Dr. Sara how long, she said "months, not years". I WILL NOT GIVE UP HOPE. I WILL NOT STOP PRAYING. GOD SAVES PEOPLE EVERYDAY AND WAYLON IS A FIGHTER. I BELIEVE that Waylon was put on this earth and given this disease to show people how to fight, how to be courageous and how to be strong. I love Waylon and I cannot lose him.
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