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Well we had the meeting with the Dr's today. Got a lot of differences ironed out. Did find out that they have approval for Macie till the 23rd. If she doesn't show any sign of gaining responsiveness then she will be sent home. If she does show some sign then she could stay longer. Right now having trouble getting her feeds going in to match what is coming out. She has been in a lot of pain and we think this is what is causing it. Going to change some meds around and adjust feeding rate so hopefully that will take care of it. We are finding out that with the brain, there just aren't a lot of hard facts to go on. Plus with Macie not being able to tell us what hurts only adds to the problem.
Thanks again for keeping her in your prayers
Brian
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Glad you got some things answered and ironed out, Brian.
I hate that y'all have to watch her go through the pain. I hope the feeding gets resolved soon.
Hang in there and don't try to figure out the why of all this, because there's no answer you'll get here in this life that'll explain or justify. Just keep doing everything you can for Macie and your family.
Many thoughts and prayers daily.
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Originally posted by Devin View PostGlad you got some things answered and ironed out, Brian.
I hate that y'all have to watch her go through the pain. I hope the feeding gets resolved soon.
Hang in there and don't try to figure out the why of all this, because there's no answer you'll get here in this life that'll explain or justify. Just keep doing everything you can for Macie and your family.
Many thoughts and prayers daily.
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