Still praying for you Macie...Hope nothing serious is wrong and the doc says you are ok on Wednesday. You are still and always in our thoughts and prayers.
The ultra sound didn't show anything either. They are thinking that the pump may be leaking. That actually is good news because the alternative is that her body was rejecting the pump. She goes to the surgeon tomorrow. They told us to plan on staying the night, maybe 2, at Memorial Children's. Trying to stay positive about it all. So IF it is a pump malfunction it's just a matter of opening Macie back up and replace it. I know that sounds harsh but the improvement in her tone and range of motion are greatly improved with the pump. So really would be a leap backwards if she rejects it.
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